Well I am still here…………..
I arrived punctual last Monday 17th, at 14.30pm as advised, ready for the operation to start at 15.00, lasting ’45 min’.
I arrived punctual last Monday 17th, at 14.30pm as advised, ready for the operation to start at 15.00, lasting ’45 min’.
Well, that turned into starting at 17.30pm and lasting over 3 hours.
At the moment I am not sure if that is a good or bad sign. I remember asking the anesthetist to ensure I would not wake up until the end of the week. Unfortunately for me, he took no notice of my request. I woke up 20 min after the operation in the recovery room. Why are they always so cold?? I was freezing. Thankfully I was wheeled up to my room shortly afterwards. I arrived to empty room, in pain. Geoff burst through the doors a couple of minutes later. He had been beside himself, as nobody had contacted him and he had no idea what happened to me. I was in pain, but hey at least the operation was over!
At the moment I am not sure if that is a good or bad sign. I remember asking the anesthetist to ensure I would not wake up until the end of the week. Unfortunately for me, he took no notice of my request. I woke up 20 min after the operation in the recovery room. Why are they always so cold?? I was freezing. Thankfully I was wheeled up to my room shortly afterwards. I arrived to empty room, in pain. Geoff burst through the doors a couple of minutes later. He had been beside himself, as nobody had contacted him and he had no idea what happened to me. I was in pain, but hey at least the operation was over!
Having read some books, done some research and also spoken
to Jose Antonio ( my ‘Doctor Competa’), who advised me what I already planned ,
that is was best if I fasted pre and post the operation, which I did. I stopped
eating last Saturday a week ago today and started again when I arrived back
home on Wednesday night. Apparently this helps in getting over the anesthetic
quicker.
What I thought most interesting is what I call the ‘cilo’ approach. What I mean is that various nurses came into my room at different times of day and night, to take my blood pressure, take my temperature, clean the room, adjust the drip with the pain killer, deliver food……………….. I rejected every meal and sent it back. I also asked them to remove the drip the day after the operation. When the pain killer liquid had emptied from the drip and they tried to attach a new sachet/ sac, they must have burst my vein or my vein simply gave in. All the liquid just went under my skin. The burning sensation was too much. I just begged the emergency bell, them to take it out, which they did. They then brought me pain killers in form of tablets, three times a day, followed by sleeping tablets at night. I took none of them. I started my Cannabis oil the morning after the operation and this is all I have taken to date. I am in pain, but to think that I am not pumping any chemicals into my body, having fasted, I think make it much easier to get over the anesthetic and the pain in manageable. What I found interesting is that nobody noticed that I did not eat anything during my stay, nor did anyone notice that I took no tablets and I genuinely wonder if anyone would have noticed if I had stayed longer than just the 2.3 days. I wonder what ‘protocol’ would state.
Wednesday afternoon the surgeon
came in and changed my dressing. She told me that I could go home and that she
would see me next Tuesday. I felt very strange walking out of the hospital with
the drainage tube and bottle still attached to me. I stuffed it into my
handbag. I am delighted that they kept the drainage tube / bottle
attached, as so far it has collected 400 ml in total. And I truly believe now
that this is what caused this second cancer in the first place. After the
last operation last June, the drainage pipe was removed less then 24 hours
after the operation, which resulted in a nasty infection, that none of ‘my’
then doctors seem to take seriously. Dr. Heymans prescribed antibiotics,
surgeon number one, Dr. Molino said the infection ‘would go away in time’, my
oncologist told me at the time, that as soon as the infection stopped hurting,
we would start with Chemo, which I did at the time. My arm and arm bit (
which is where the infection was) were numb for a few months ( just like
it is again now) and when I eventually had some feeling back, I noticed the
lump, which we now know was cancer all along.
My instinctive behaviour would be to pursue this and try to hold the doctors I consider accountable responsible. But, actually I can’t be bothered. It would be hard to prove, and there are no guarantees and would just waste a lot of energy.
Instead, I hope that enough / all necessary liquid is going to come. It is strange walking around with a tube coming out of my body attached to a bottle with rather ugly looking liquid in it. I have twice already managed to get up and start walking, forgetting to take me ‘attachment with me’. (Yes it hurt).
The remainder of this week, was spent sleeping as I have increased my Cannabis oil doses again. I saw a photo of the tumor and am hoping that the surgeon will email it to me. Fascinating to see the mass of ‘meat’ that was cut out and amazing to see the tumor, which was so easy to identify within the meat mass. Part of me would like to touch it, now that it is out. Whilst it was in me, I could feel how hard it was, was able to move it around a little, but could also feel that it was ‘attached’, which meant I could only ever just push it around a bit.
Kyla ( officially our family nurse) has been changing my bandage. I tried
looking at it, but have to say that I did not have the ‘stomach’ for it. It
still amazes me how Kyla does it. I know she has had practice with Dan, but
every wound is different and my stitches are right underneath the centre of my
arm pit. As I can’t straighten my arm, it makes it hard for Kyla to get to the
actual stitches. I am still amazed at how the medical system here simply expects family members to deal with the patients. Imagine if I did not have Kyla? ( those of you who know Geoff will agree with me, that it's best if he does not come anywhere near my stitches. Last year, after the first operation he tried to change the bandage and ended up 'patting it down' nicely to ensure it stuck on well. I hit the roof in pain.)
My instinctive behaviour would be to pursue this and try to hold the doctors I consider accountable responsible. But, actually I can’t be bothered. It would be hard to prove, and there are no guarantees and would just waste a lot of energy.
Instead, I hope that enough / all necessary liquid is going to come. It is strange walking around with a tube coming out of my body attached to a bottle with rather ugly looking liquid in it. I have twice already managed to get up and start walking, forgetting to take me ‘attachment with me’. (Yes it hurt).
The remainder of this week, was spent sleeping as I have increased my Cannabis oil doses again. I saw a photo of the tumor and am hoping that the surgeon will email it to me. Fascinating to see the mass of ‘meat’ that was cut out and amazing to see the tumor, which was so easy to identify within the meat mass. Part of me would like to touch it, now that it is out. Whilst it was in me, I could feel how hard it was, was able to move it around a little, but could also feel that it was ‘attached’, which meant I could only ever just push it around a bit.
Up
until last Friday, I thought I was recovering as well as can be expected. By
Saturday I was feeling unwell and on Sunday I thought I was dying. Terrible nausea,
in pain, stomach cramps, diarrhea, unable to focus or talk properly. I thought
about what I had eaten, ( which was very little and only fruit and vegetables)
or drunk ( water only) and figured that maybe it was the antibiotics that I was
prescribed Wednesday evening after I left the hospital. Not again! I know I was
allergic to the antibiotics I received after the last operation, but this one
was different, yet it appears by the reaction I had, I was allergic to this one
too. I stopped taking it Sunday lunchtime, emailed the surgeon to let her know
( she agreed with me) and since then feel almost as I did prior to taking the
pills. That means, with manageable pain during the day, but hard to sleep at
night.
I
ask though, who can honestly be expected to have a proper night’s
sleep, when the entire arm hurts, (the inside of my inner arm is so sensitive,
that even a shirt / jumper against the skin sends me off the wall), I have the
tube stuck in me, taped to the side of my body attached to my plastic bottle.
Makes lying down or turning around somewhat of a challenge.
I am due to see the surgeon at 19.00pm today, and hope that she will remove the drainage. Although, I can honestly say, that I am not looking forward to that one. I can see the skin starting to grow over the point where the tube enters my body. I think I will take an extra doses of Cannabis oil.
I do actually have some great news for me. The 1 February the tumor was 2.7 cm large, the 22 March my tumor was 3 cm large. The last 3 weeks I have been dosing myself up with Cannabis Oil , as per the Rick Simpson recommendations of 1ml per day. I saw in my operation notes, that the tumor they removed was 2.5cm. I will ask my surgeon later, why she thinks this might be. They measured the tumor when I had the scans from every angle and there is no reason to disbelieve that it was 3 cm big during the last scan. This must mean that what Rick Simpson preaches is true. Cannabis oil kills cancer cells, well to be correct, cannabis oil makes cancer cells commit suicide. Remarkable, I have the actual proof here. By normal calculations the tumor should have been larger than 3 cm on the day of the operation, yet is had reduced in size. I am feeling relieved. Not because the tumor shrunk ( I don’t believe from what I know that this would have made a big difference during the operation), but knowing that it shrunk, can only mean it has also killed any cancer cells I might have left in my body. Needless to say, I have ordered more oil already.
I am due to see the surgeon at 19.00pm today, and hope that she will remove the drainage. Although, I can honestly say, that I am not looking forward to that one. I can see the skin starting to grow over the point where the tube enters my body. I think I will take an extra doses of Cannabis oil.
I do actually have some great news for me. The 1 February the tumor was 2.7 cm large, the 22 March my tumor was 3 cm large. The last 3 weeks I have been dosing myself up with Cannabis Oil , as per the Rick Simpson recommendations of 1ml per day. I saw in my operation notes, that the tumor they removed was 2.5cm. I will ask my surgeon later, why she thinks this might be. They measured the tumor when I had the scans from every angle and there is no reason to disbelieve that it was 3 cm big during the last scan. This must mean that what Rick Simpson preaches is true. Cannabis oil kills cancer cells, well to be correct, cannabis oil makes cancer cells commit suicide. Remarkable, I have the actual proof here. By normal calculations the tumor should have been larger than 3 cm on the day of the operation, yet is had reduced in size. I am feeling relieved. Not because the tumor shrunk ( I don’t believe from what I know that this would have made a big difference during the operation), but knowing that it shrunk, can only mean it has also killed any cancer cells I might have left in my body. Needless to say, I have ordered more oil already.
So
that is great news!
What is also great news is how much ‘liquid’ / ‘blood’ has come out via the drainage this last week. No wonder I ended up with a nasty infection the last time, after they removed the drainage the day after the operation.
What is also great news is how much ‘liquid’ / ‘blood’ has come out via the drainage this last week. No wonder I ended up with a nasty infection the last time, after they removed the drainage the day after the operation.
Off to do some ‘arm exercises’ now, which consist of me ‘waving’ to nobody in particular. How a simply movement like this, can be so hard?! And painful. I naively wrote last week, that I saw the operation as a ‘minor annoyance’, when looking at the bigger picture, but right now, this ‘minor annoyance’ is actually a big deal.
I don’t
have the result of the tumor yet, so this is the next hurdle. Let’s
see if the surgeon has them already later today.
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