As Kyla can't pick the baby up due to the many wires, and the nurses won't help her lift the baby out, therefore she tried breast feeding standing up in the middle of the night.
Can my poor daughter sink any lower?
Understandably, standing up whilst trying to breast feed a new born, who is attached via various wires to the wall unit, proved impossible. ( Show me a mum who could have mastered the art of that one!)
This left Kyla with no choice in having to call a nurse asking her to bring her the milk ( labelled with Aiyála's name), which she had expressed earlier in one of her bottles.
The nurse promptly returned with a bottle of milk, sadly not with Kyla's, but that of another mother. When Kyla pointed that it out to the nurse, she was met with the same shoulder shrug as last night and then disappeared, leaving Kyla with a hungry crying baby.
Word are starting to fail me...................
Hi there. You may not remember me I used to be a friend of Rheas when she used to attend torrox primary school. I have followed your blog out of interest (my sister is an oncology nurse) since the summer when kyla shared your link. I just wanted to say how much I feel for you all at the moment. I had my daughter 18 months ago and she had bowel surgeries at a few hours old and at 8 weeks old which resulted in a 3 month stay in a critical care unit. I can't believe what you are describing about the care they are receiving. It is bad enough being in that situation let alone not getting any support/advice or comfort from the nurses. It sounds absolutely atrocious. I'm so sorry that this is happening to kyla a and the baby. Our experience was completly different (we are in the uk now) and we received nothing but fantastic care from all the surgeons, doctors nurses and anyone in between which made so much difference and helped me cope with everything going on. I should think your all at your wits end! I just wanted to say I'm thinking of them and wishing the baby a speedy recovery. Everything you described bought back scary memories and I couldn't help really feeling for kyl a, especially with what you have said about the so called care. Wishing you all much brighter days ahead xxx
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ReplyDeleteHI Rochelle, of course I remember you!! I know it has been 16 years, but I remember you girls all playing together. Thank you so much for your mail / comment, of course I will let Rhea and Kyla know. Yes, this is a living nightmare. I am only writing about the main points, there are so many more, that would make your hair curl ( maybe this is why my hair is growing back curly!!!! I am really sorry to hear about your little daughter, it must have been so upsetting. Even if you have the best care, the stress and worry about your child is awful, but by the sound of it, you had better care then us............ having said that, I doubt it could get much worse. But, we are on a countdown now, the oxygen has been removed, as has the feeding tube, and once Kyla manages the art of 'breast feeding standing up' (would love to see others try it), we are on the home run. We hope! take care, kiss you little girl and enjoy every minute and if you head back to Spain, do let us know, would be great to catch up. ( Can't believe you are a mum!!!!!, this makes me feel so so old!!) xxx
ReplyDeleteStruggling g to compose myself here...anger.
ReplyDeleteIt is great that she has moved, less intense care needed. That's is why they are now assuming Kyla will increase what she can do but they are making it so difficult for her. I can only speak for here, in that you / Kyla needs to DEMAND an appt with nurse in charge to complain. Here, the Mexico staff would not get involved in nursing issues but it might be different inSpain. Appears to me that she only has an oxygen meter, fluid tube and feeding tube. She needs to be able to hold and feed her comfortably, if things alarm then the nurses will have to reset it....gets some attention.....There is very little damage she can cause re the tubes. This is so hearbreking for Kyla because I am sure she does not want to make the poor relationship any worse
Medical staff not Mexico. In work !!!!
ReplyDeleteYou are so right, Kyla is treading on egg shells with the nursing staff. She was told by the nurses this morning to 'tidy up the room', before the cardiologist arrive. They were referring to the mattress we had brought in, so Kyla could at least lie down. Not really sure where they thought Kyla would put the mattress for the visit. Kyla has been through the mill, and I am over the moon that as a result of all the stress her mild has not dried up.
ReplyDeletetidy room 😖 WTF. UK nurses are not perfect but Spanish nurses need to re-examine their bloody priorities.
ReplyDeleteI could not agree more......... overall a 'tidy room' just isn't important and impossible to do, when no furniture is provided.
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